MS Awareness Week 2020 – Day 7 #ThisIsMS

So, how does one end a week of posting about a life with multiple sclerosis? That’s the question I have been asking myself all week. To answer this, I thought back to why I stepped out to become public about my MS and why I posted this week.

Every person has some struggle that she/he is dealing with, or they will in the future. Those struggles often lead to questioning “Why me?” Those struggles often lead to pain which can be both debilitating and contagious.

For whatever reason, I am blessed to be engineered to want to fight this. The question was never, “Why me?” It was always, “Why not me? What makes me so special that I deserve a life free of pain, struggle, or challenges? OK, now how am I going to fight this – for me, my family, my friends, and my community?” That’s why I stepped out 2.5 years ago. That’s why I posted this week. My intent has been to show a more balanced view of what MS is for me (and others?). I was exhausted seeing only the negative side of MS. I hope I showed an honest point of view. Life is neither normal nor abnormal. It is not binary of easy or hard. 
I hope I never came across as a victim because I have never viewed this in that manner. In many ways, my feelings are the exact opposite. MS has given me new context and perspective. It has given me an opportunity to help others. 
It has instilled an internal fire to love every moment and the people in my life.

#ThisIsMS (Pic is from a rock pile where I first publicly stated I had MS. It’s written on a rock down there… somewhere amongst all the other secrets and proclamations.)

So, how does one end a week of posting about a life with multiple sclerosis? That’s the question I have been asking myself all week. To answer this, I thought back to why I stepped out to become public about my MS and why I posted this week.

Every person has some struggle that she/he is dealing with, or they will in the future. Those struggles often lead to questioning “Why me?” Those struggles often lead to pain which can be both debilitating and contagious.

For whatever reason, I am blessed to be engineered to want to fight this. The question was never, “Why me?” It was always, “Why not me? What makes me so special that I deserve a life free of pain, struggle, or challenges? OK, now how am I going to fight this – for me, my family, my friends, and my community?” That’s why I stepped out 2.5 years ago. That’s why I posted this week. My intent has been to show a more balanced view of what MS is for me (and others?). I was exhausted seeing only the negative side of MS. I hope I showed an honest point of view. Life is neither normal nor abnormal. It is not binary of easy or hard.

I hope I never came across as a victim because I have never viewed this in that manner. In many ways, my feelings are the exact opposite. MS has given me new context and perspective. It has given me an opportunity to help others.

It has instilled an internal fire to love every moment and the people in my life.

#ThisIsMS (Pic is from a rock pile where I first publicly stated I had MS. It’s written on a rock down there… somewhere amongst all the other secrets and proclamations.)

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