The author reflects on twelve years since their multiple sclerosis diagnosis, sharing the challenges and transformations experienced during this time. Initially perceived as a loss, the diagnosis led to a deeper understanding of life, vulnerability, and connections with loved ones, particularly through shared struggles with chronic illness.
Category Archives: Multiple Sclerosis
Living Longer, Living Uncertain: The Mental Health Paradox of Modern Multiple Sclerosis Treatment
This blog post has probably been the most difficult to draft. It runs the risk of being misinterpreted as a personal cry for help. (It is not, and I love you for caring.) It risks sounding judgmental. (It is not, and I am here to help whether we are now friends or soon to beContinue reading “Living Longer, Living Uncertain: The Mental Health Paradox of Modern Multiple Sclerosis Treatment”
Eleven Years: What MS Has Taught Me About Time, Probability, and Purpose
Eleven years with MS has taught me that life is rarely good or bad in itself. It is uncertain, often answered only with “maybe.” Within that uncertainty, I have found clarity: to guard my time, honor my priorities, and live our family mission of Mostest.
The Future of MS: What Does A Cure Mean & Unintended Consequences
The National Multiple Sclerosis Society has been undergoing a leadership change with the retirement of our previous CEO and the appointment of our new CEO (Congrats, Tim!). The new CEO will build on the immense progress made in understanding multiple sclerosis (MS), including its potential links to Epstein-Barr. The confluence of these has caused meContinue reading “The Future of MS: What Does A Cure Mean & Unintended Consequences “